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Found 15 results

  1. Dear everyone, I am not sure if my personal story is a very interesting read, since it is so similar to every other story in here. Nevertheless, it might be some who wants to read it, so I will sum it up very shortly in this post. For you who want to skip to my questions, I will post them in the last paragraph. My story - explained very shortly and simply Facial blushing (FB) started as problem for me when I was around 13-14 years old. I have always done well in school, but now presentations, group work or just raising the hand asking a question became a very painful experience. Going bright red, feeling the cheeks getting intensely warm and having stairs and comments from fellow students. I tried different solutions (nothing really helped, see paragraph below) so I started having suicidal thoughts when I was about 16 years old, because I didn´t feel I could be myself in this life and there were no cure for it. Was scheduled to have ETS when I was around 17, but cancelled before I had it, because the fear of the side effects. Had therapy instead. It is now 10 years since the problem started. It is not as bad as when I was 16, I am coping with the problem, but I am certainly not living life. I am far from where I could be in my professional life, and when it comes the social life it is practically non-existent (Dating isn´t an option and keeping meaningful friendship isn´t the easiest when you really want to have them being yourself, but at the same time trying to avoid different social situations because of the problem). Some of the things I have tried (none of them have been really successful) - Therapy - Hypnotherapy - Life coaching - Lasers * IPL laser didn´t work at all. But after about 5-6 treatments with the PDL (pulsed dye laser) Vbeam, the redness has been reduced about 20-25 %. Especially when flushing, like being outside in a cold weather and then going inside. - Beta-blockers * This I have found to be the best temporary solution available today. It doesn´t remove the blushing, but makes it much easier. I take them in situations I have to be in (like meetings at work), when I know I am going to blush. I take them 1 hour before, but I always get very tired for the rest of the day. - Being careless/not giving a f@ck. * It has somewhat helped, a long with therapy and coaching, in my everyday life. Focusing on what I want in life, vs what other people think, focusing on what is good about myself vs what is bad, etc. However, in FB-situations I have found it impossible to just focus on being careless. The sympathetic nervous system takes over and that you have no control over. - Different creams and cover-ups - Getting a tan - Growing a beard - Working out very intensely, eating healthy, meditate, etc. Different thoughts and experiences: I have read through tons of forums and webpages (this one and others) and spoken to different surgeons and doctors. I am amazed by how few good solutions todays medicine has to offer FB-people. Take Sweden for example. This is the country who invented the ETS-surgery, so they clearly acknowledge that it is a big problem for people in the society. Because of the side effects they have banned the surgery. But, the problem is still there! I can not believe that they let people just have the problem, and not putting money and energy in to finding better cures! The closest I have come to reading about alternative solutions are: 1) Stellate Ganglion Block. This is fluid being injected in the neck-area, and is supposed to paralyze the same nerve as you destroy in the ETS-surgery. However because of where you have to inject, you do it at the T1-level, which very often gives you Horners Syndrom. As I understand it the effects also only last for a couple of hours, which doesn´t make it a possible cure. 2) Botox. I have read that they tested this for FB in Great Britain around year 2008, but I am yet to hear about any successful results from it. It has become somewhat a mission for me, being a part of influencing surgeons/doctors/scientists to finding new solutions for FB. I am convinced that with todays technology and how much we now know in medicine, it shouldn´t be difficult finding better solutions than what is available today. In my opinion there are two ways to go about curing this: 1) Finding out why some people have more visible blood capillaries in the face, and from that finding out how to remove them. Of course, if you originate from Africa and have completely dark skin, FB isn´t visible. But for most people, with completely pale skin, it isn´t physically possible to blush no matter how embarrassed they get (they just don´t have capillaries in the outer skin of the face that are visible and expands). What is different with them? 2) Finding better cures than the ETS-surgery, that gives less side effects. I think there are particularly two things that doctors and scientists need to be made aware off, which could help in research being started and done on a bigger scale: - The ethical incentive: Making them realize how much this impacts the people having this problem. Just to mention some problem in my life because of this: Being rejected by girls when asking them out in a date, because I go bright red and that is a sign of weakness/insecurity and they want a confident man. Not getting a job, much for the same reason, at job interviews they want someone that comes a cross certain. Being assumed to be gay trying to get new male friends, because blushing when greeting them. Basically daily humiliations that destroys both the professional and social life. - The economical incentive: Making them realize how many who actually struggles with this, and how poorly todays solutions are. The people who finds better solutions for this, with less side effects, will by no doubt (and well deservingly) become very rich. I expect it also is a question of funding the research to start with. I myself would gladly help do this, and I assume I am not alone here about that on this forum, so if I come across a possible opportunity of starting to fund research with the focus on finding new solutions, I will let you know. I should also mention what KPRF is: It stands for keratosis pilaris rubra faceii, and is just fancy terminology for being born with red cheeks (Or it starts appearing when you are like 1 or 2 years old). Most doctors have not even heard of this, because it has been done so little research on. You can google it if you want to see a picture of it, and it should be noted that it is NOT the same as Rosacea. When I am calm the color is a light pink, and it blends in well with the rest of my face color. When I blush, the cheeks get dark red and very hot. I can blush for some seconds about something embarrassing, and then going back to the light color. But the worst scenarios are when I am in a "spotlight situation", like giving a presentation. That is a guaranteed blushing situation, but then my cheeks remain flushed for the entire situation and also for many minuets after when I am done with it. Like I have said, I am convinced we will find better solution to FB in the future. However I fear it will not happen too soon, and I think that I have tried everything else, but ETS now. Being the only possible solution left available, I am therefore again strongly considering it. If I go through with the surgery I will definitely come back and share my experience. So, this is the reason for the 2 questions I have written below: Questions: 1. Has anyone had the ETS-surgery, who before only blushed in the cheeks, and now are satisfied with the result? 2. Has anyone had the ETS-surgery, and before got red and it stayed like that for many minutes (perhaps even hours)? And are you now satisfied with the result? The reason why I am asking these two questions is because I am considering the ETS-surgery, and my problems are the two mentioned above. Also I have read several places that the surgery might not be effective for my type of problem (One source: http://www.chir.it/en_erythrophobia.php?lang=en)
  2. ETS Surgery very soon

    Hello everyone, to begin I would like to say that I am an eighteen-year-old girl from France, and have been suffering from excessive, uncontrollable blushing since I was fourteen. This may seem alarming since I am typing in English but I was taught the language at a very young age. After a year of being on this website, I have concluded that this is the last remaining right option for me. I have tried cognitive behavior therapy, and I have tried medications such as propranolol, clonidine, SSRI's and Benzos. They may have given relief for a few hours each time, but I don't think this is the answer to my problem. The blushing makes me very unsociable, anxious, sometimes depressed and worried, and this is one of the reasons why I am deciding to bite the bullet. It is very debilitating to have seen the friends I lost around 15 years old because of the stress and anxiety I had, I just didn't like being around people anymore, and I did not like this since beforehand I was the most sociable of the bunch! I am acutely aware of the side effects of this surgery. Compensatory sweating, heart rate decrease, and potential Horner's syndrome but honestly I would happily switch constant heat in my face for stomach, back, feet and leg sweat. Please take into consideration that during the summer my hands and feet sweat on a 7-8 level, my face to a level 9 and my trunk to a level 0. (1 best 10 worst) After seeing two surgeons (one who refused to do the surgery because of the risks of Horner's syndrome and the other who said he would do it but the cost was very high- 12,000, this is because he was not in France ). I am seeing a surgeon on the 7th of September 2017 which is two days away now. The surgeon is in France which means the surgery should be covered or partially covered by my insurance. I would like to finish off by saying that if anyone who has had the surgery could contact me for support and advice, that would be great and that once my surgery is over I will be happy to answer any questions! Please take into account that this thread will be updated often after my surgery. Thank you for any support and feel free to leave responses
  3. To those who have had ETS I would like to share a little secret. I manage to block all sweat from my armpits with antiperspirant ''etiaxil'' I highly recommend an application once a week the first week and then once every three days. Please keep in mind it is not the cheapest antiperspirant out there and it is about a 4/10 itchiness on first application but I mean if you can rid of the sweating, I think it is worth a try. If someone who has had ETS could tell me what its like if they apply antiperspirant to the areas ( stomach, lower back... ((maybe someone else can help you here)) and inner thighs as I am getting ETS myself and believe that this antiperspirant could a potential help. I mean, this never been mentioned and it is the second line basic treatment for sweating after deodorant and I feel like it should not be overlooked
  4. I have had chronic, pathological blushing since childhood. That is the first time I have ever written those words. I've never said them aloud. Aside from overhearing people say, "Aw, look how red she's getting", my reddening is not something that has ever been discussed or acknowledged by my friends or family. I guess it's the "red elephant" in the room. How have people not asked me about it? How have I not had the courage to bring it up? I have never even had the nerve to research it. I guess I thought that admitting that it happens, even typing the words into a computer, would have been letting it win, making it real. And if I had ever had the courage to talk to my family about it, two things would have happened: 1) I would have blushed (and we all know that we avoid any situations/conversations that make us blush) and 2) they wouldn't have understood. I have never even googled blushing before today. Once I did, I was shocked to learn that there are so many other people who suffer from this condition. And I mean suffer. I felt such relief to know I was not alone. I am going to assume that anyone reading this does not need the bleak, destructive effects of facial blushing on one's life explained. How the fear of blushing is all consuming, or the havoc blushing reeks on one's social and professional life, how infuriating it is having a condition like this because you know you are better than this, more confident that your face it letting on, not embarrassed, not shy, not pathetic, not someone people should feel sorry for. Did I mention, "Aw, look how red she's getting?" I cannot say that any of the websites have helped me understand or explain why I redden when the cashier at the supermarket asks me a question, or when I am called on unexpectedly, or when I run into an acquaintance on the street, or when I think I may have said/done something wrong, or when I have to repeat myself because someone didn't hear me. But now I know there are treatments. I used to wish that I was of a nationality with darker skin so that no one would see the blushing. As a kid I was jealous of my friend with the jet-black skin. In high school I used to wish I was an inanimate object. There were days where I would have traded my life for that of a pencil because pencils don't blush. Crazy, huh? I have considered ridiculous solutions like staying chronically sunburned, or always being "two and a half glasses of wine" tipsy, or pretending to have chronic allergies so that I could cover my face with a tissue at any given moment. If women could grow beards, I would be the Wolfman. I know, I am being too garrulous. It's just that this is my "coming out of the oven" so to say and I'm still shocked that this community exists. I don't know my next move though. Can anyone share any thoughts or recommendations on meds or cognitive/behavioral treatments that may work? Although I would let a doctor come into my house right now and perform ETS on me on my kitchen table with a butter knife (now that I know such a treatment exists), I know it would be more prudent if I try other treatments first. Any feedback would be very much appreciated. Yours in redness, Tomato Face
  5. Hi! Just came across this video of a top surgeon explaining compensatory sweating (CS), and I wanted to share it: https://www.youtube.com/watch?v=TGIc-kWR2_M It's kind of disgusting to hear how severe this side effect can be. And being that this is coming from a surgeon, it's not just a horror story from a dissatisfied patient, but something that clearly this surgeon has documented. Here are his own words: "And there are some that develop what I call a severe form of compensatory sweating, where it just soaks through your clothes. And it is not if you are outside exercising, or inside exercising, or you are outside in heat or humidity. People will sweat, and should sweat, in situations like that. But if you are like in an air-conditioned environment, like I am now, and it's soaking though my shirt, or the lower back, or even my pants or the groin. It's soaking through clothes, that's compensatory sweating" - Dr. David Nielson This also show what I have been reading on other forums; that it maybe should be called reflex sweating instead of compensatory sweating, since it is not like you sweat the same amount as before, just that everything now goes below the nipple line. You actually sweat a lot more, an increased amount. As I understand it, this is the body's way of reacting when hurting (healthy) nerves, and I believe this can be seen for instance when people have been in car accidents. Where nerves have been damaged, and the person involved afterwards sweats a lot more. Me personally, when being ill, I sweat al lot more, but I don't know if that is relevant to having nerves destroyed.
  6. Hi I just recently joined this forum because I am in need of answers. I am a facial blusher and am seriously down n depressed. It's taking over my life and I'm only 24 years old. I avoid every situation and have lost friends. People think I am weird and know I have a problem I'm thinking of getting ETS surgery in Melbourne by Dr.Roger Bell. Can anyone please please give me their experience and advice if they have been to him? Was it worth it?
  7. Like many of you, my life is controlled by my facial blushing. It consumes my every thought and prevents me from living my life the way I want to. I have slight rosacea and fair, sensitive skin, so it does not take much for my face to turn bright red. Within the past few days, I have had some especially bad blushing episodes where the people around me have asked me if I'm okay because my face is so red. But this isn't abnormal for me; my blushing is so bad that rather than being made fun of for it, the people around me typically express concern. I feel like this is almost worse, as it indicates that my face must be turning REALLY red. Because of all this, I have been feeling extremely depressed recently. I will be graduating from college in May, so I feel like this is the time for me to really do something about this problem before I enter the work world. I have had issues with FB since I was probably around 11 and it just keeps getting worse, so I do not want to suffer with this problem any longer. I have already tried anxiety medications like Beta Blockers and Xanax, but these are more fast-acting and do not last long enough each day to fully help. I tried SSRI's in high school/beginning of college, but they made me lethargic and decreased my libido immensely. My next step will most likely be CBT, but for some reason I'm not very confident this will help. I think it could definitely address the root of the problem, which is clearly social anxiety and low self-esteem, but I'm nervous this isn't enough. That's why I've started to consider ETS, although I feel like it is an extremely unrealistic option for me. The biggest problem is money -- I've heard it's extremely expensive and rarely covered by insurance. Another huge issue is side effects... I'm really freaked out by some of the horror stories I've read about. And then the third problem is my family. I cannot even imagine telling them, as no one else in my family deals with this issue in the slightest (I'm not sure I've even witnessed any of them blush), so I doubt they'd understand or support me in this decision. I also don't even know where I would go for this procedure, as I haven't been able to find anywhere in Boston that performs this procedure (it seems Mass General does but only for hyperhidrosis... thinking about calling them anyway). Anyway, I apologize for the long post but it did feel good to get it all out. I haven't confided in anyone about this problem because I'm too embarrassed, so I'm really glad to have found this website. I know I didn't really ask a concrete question, but I would just love some advice or general words of wisdom from anyone who has gone through the same thing. Feedback on CBT, ETS, and maybe even meds that are helpful would be greatly appreciated. I just don't know what to do about all this! Thank you so much!
  8. Hi! The most common side effect I read about from the blushing surgery is compensatory sweating (CS). It seems you are almost guaranteed to get at least a little bit of this. But two other side effects I read about is extremely cold hands and fatigue/tiredness. I was wondering how common these side effects are. If it is extremely rare, or if it is as common as CS. To all of you who have had surgery done for blushing, do you have colder hands than before? I have read several posts about people having extra warm hands for a year, and then having permanently extremely cold hands thereafter. Do you have this, and if so, how bad is it? Are you more tired than before? If so, how is this affecting your life? Cheers
  9. Hi! I have read somewhere of people who have had the ETS-surgery done, who said it had a beta blocker effect on the heart. I was wondering if people who have had the ETS-surgery agrees with this statement, and if so, could explain what it means for you. I have myself tried beta blockers (propranolol), and it did help a lot with blushing, but I also got a lot of side effects. Some of them were: getting extremely tired, increased appetite and cravings for sugar, having a hard time being physically active, cold hands, decreased heart rate, increased sweating, etc. I was wondering, since I had these side effects from taking beta blockers, can I expect to have them from the ETS-surgery as well? Decreased heart rate is a common side effect, also recognized by surgeons who perform ETS, but I have never read that the ETS for instance can give you increased appetite. Hope I can get more clear about this. It would help in understanding the consequences of the ETS-surgery to a greater extent, and by that able me to make a better decision of whether or not I should go through with it
  10. ETS AND HEARTRATE

    Do any people who've undergone the operation know the change in their heartrate- before/after. I've read 10 to up to 50% of patients report a drop in heartrate. Haven't read anyhing drastic but has it effected your exercise/activities/comfort/general health in any ways? Good or bad? I haven't had he operation but today i've been laying down and took 3 measurements of my BPM. I'm healhy and fit... The first was 79, then 83 twice. Kinda high. Anyway thanks for any responses
  11. I get bad blushing and also flushing. I feel like they are both caused by stress in some form or another -- but most people say ETS doesn't have much of an effect on flushing?
  12. Hi all blushers (and hopefully many former blushers!)! The goal with this post/topic is to create an arena where people who have had ETS-surgery goes in to detail of how effective it was curing blushing and what kinds of side effects they got from it. The reason why I have created this topic is because I believe it will give a wider and more accurate picture of what to expect from the surgery, which will enable people who haven´t had the surgery yet to make a better decision of whether to go through with it or not. The information out there is very diverse. The surgeons base their information on side effects from a question form sent out usually 6 month after surgery. From what I have read in different forums, the most severe side effect don´t start until 2 years or more after the surgery. Also the results seem to vary based on factors like whether you are male/female, how old you were having the surgery, if the nerves got clamped or burned, if you are overweight or not. Information that we don´t usually get from surgeons, but that people report from forums. And lastly, people write about side effect they got from the surgery, that surgeons never mention. I have read through a lot of the testimonials and forums on this site and others, but there often lacks a great deal on information. Plus, it seems to be the same people responding over and over again, which doesn´t give a wide range of experiences. It also is both hard and time consuming for people searching through that much information. Hopefully, after people responding to this post, we will all have a clearer and greater picture of the truth of the ETS-surgery. To make the posts on this topic as complimentary and accurate as possible, I have made out some guidelines for what should be in your post. Please try to follow them to the best of your ability, as I believe it will be of great help for many. Some questions might be a bit uncomfortable to answer, but keep in mind that none of the answers will make it possible to link up the information to a specific person: - 1. First, ONLY write a post if you actually have had the ETS-surgery (or a blushing surgery called something else, like the ESB-surgery). This topic is made specifically for this. - 2. Try to say all that you want to say in ONE post, as this topic is meant for as many different peoples opinions as possible. - 3. When did you have the surgery done (year and month)? - 4. How old were you when you had the surgery? - 5. Are you male or female? - 6. Did the surgeons cut/burn the nerves or did they put on titanium clamps? And at what t-level did they do it? T2? T3? Both? - 7. Are you overweight? Do you eat healthy? - 8. Did you get CS (compensatory sweating), and how bad is it? PLEASE go in to details. How is it affecting your daily life? Do you just sweat a little bit more during workouts or do you get soaking wet just by going outside on a warm day? - 9. Did you get dry hands, and how bad is it? Do you have to just moisturizer once a day and then they are like normal, or do you have constant dry hands no matter what? Please go in to detail on how it is affecting your daily life. - 10. Did you get cold hands? - 11. Have you lost hair on you head or facial hair? - 12. Is it harder exercising now? How bad is it? - 13. Has the sex life got worse after the surgery? Like have you got decreased libido? - 14. Have you had problem focusing on mental tasks? Like studying for many hours or doing some kind of intellectual work over a longer period of time? - 15. Have you had problems with your upper body getting over-heated (split body syndrome)? - 16. Have you experienced you personality changing? Not being able to feel strong emotions, like positive highs or negative lows? - 17. Has your energy level decreased? - 18. Any other side effects you had that aren´t mentioned above? Everything you share is appreciated, and the more detailed you are, the better. - 19. How bad was the blushing before the surgery? What kind of situation would make you blush? Did you get red and warm and then it would quickly go away, or could the redness and heat stay for many minutes to hours? - 20. How is the blushing problem today? Do you blush at all? - 21. How is your life in general after the surgery? Happy about the result? From your perspective, do you recommend people going through with it? (I am myself in the position of trying to gather information and then decide. Had I done the surgery already, I would of course also have started of this topic with a post of my own experience). To all who have had the surgery done, and choose to share their story about it, a BIG thank you! I am sure it will be appreciated by a lot of people!
  13. I had ETS in Australia after years of suffering all the horrible emotional and psychological symptoms of uncontrollable blushing. My blushing was so out of control, that I was also diagnosed with social phobia because going out in public just became so humiliating. ETS is honestly the best thing I ever did and I feel as though my life started again the day I had the surgery. I'm not certain I would still be here if I had not managed to find a solution to the condition I found so disabling. When I woke from the anaesthetic, the first thing I noticed was the dryness of my hands. They felt slightly sand-papery, unusually dry. The dry hands is probably the worst side-effect for me, my hands (the palms and around the nails) get so dry that they are painful. I constantly use hand cream and am always looking for the next product that will treat the dryness, rather than just act as a temporary barrier. Does anyone else experience this? Any tips? The post-operative pain was a surprise, breathing was quite difficult for 2-3 days and my lungs felt as though they were thoroughly bruised. My nose, chin and top lip sweat quite a bit when I am eating or thinking about eating, not only spicy food but any type of food. This I consider to be a small issue and I have become used to it. Nobody else seems to notice. Compensatory sweating is definitely an issue, I sweat in places like my groin (not a good look!), feet, thighs and back if I am hot and especially if I am anxious. I manage this by wearing darker clothing. My wardrobe is full of black! These days, I may blush if I am extremely embarrassed, the way I imagine "normal people" blush, but never to the excruciating degree that I used to and the blush is always brief. Whilst my particular side-effects from ETS can be annoying, they are a very acceptable trade-off for no longer blushing.
  14. Hypnosis works

    http://myblushingcure.com/how-did-i-cure-my-blushing/
  15. Hi everyone. Had ETS clamping 2 months ago. I am from East Europe, Romania, i made the surgery in my country, bukarest city. Hospital St.Ioan. Dr Vasile Popa, very good professionist. I got 2 clamps on each side between t2 and t3 ganglia. I had FB, facial HH, anxiety and panic attacks. I will try to be very specific. First of all i want to thank God and St.Nektarios from Greece for giving me the chance for a good surgery. I have many of my simptoms go away with minimum side effects.At least until now. Until now i had no sweat on my face and hands. Skin is normall. FB reduced a lot, now is more like a flushing i think, but is a very good condition comparing with the past, in fact is the past obsession who made me to pay attention on this. Reflex sweating is ok, maybe 10-15% more like before, i was a heavy sweaater anyway. Dry hands, normal skin. Some weard symptoms in those months maybe but ETS is a major surgery not an simple one. Body is changing. First month was a little bit difficult a little freezing in april, some sleepiness, a little depressed but like i said body is changing. Now is better. I changed the workplace in an office. Much better for me like before. I must try to avoid coffee and alcohol as much as possible, it is much better. I post here two links about St.Nektarios who really helped me in this surgery. http://www.stnektariosmonastery.org/ourfaith.php http://en.wikipedia.org/wiki/Nectarios_of_Aegina I will come back with informations and details. i will answer also on this adress michuets@yahoo.com God help everyone. Take care.
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