Activity Stream

Activity Stream

  1. Kalheesi added a post in a topic London Support Group   

    Super_mushroom, yes maybe lol. 
    I cannot do Tuesdays for the moment and I'll be on holiday from next week week until the end of the month ✈️🛩️ can't wait to get out of here and have a bit of peace and relax from all this day to day stress 
  2. Filur added a post in a topic Just sick of it burning up on our date night   

    I'm lucky. It still has some effect. I'm not worried about going red anymore. And that compared with it is physical harder to go red. All in all makes blushing a non issue now.
    But.... "healing" takes time. So it can change when nerves grow back again (like it luckily did for my site effects). But sure i hope not 😉.
  3. Beetroot added a post in a topic Just sick of it burning up on our date night   

    As has been stated before, it seems like something to do with the sympathetic nervous system. However, its figuring out which part of it is malfunctioning!
     
    Surely there are people/departments we could contact in order to research this condition or carry out further testing - i know I would be up for volunteering!
  4. Mrhot added a post in a topic Just sick of it burning up on our date night   

     whats wrong with us...
  5. redattack added a post in a topic Just sick of it burning up on our date night   

    me to had all that had to have dye injected doctor thought I was all out of sync like body temp to hot
    all came back normal
    what the hell is wrong with me
  6. Mrhot added a post in a topic Just sick of it burning up on our date night   

    Ive had blood tests
    ecg test
    24hr blood presure tests
    urine tests
     
    all normall
  7. Beetroot added a post in a topic Just sick of it burning up on our date night   

    I feel for you red attack. We all know how depressing this condition can be and how much it affects our daily lives. 
     
    I think the only way we ever get a solution to this is through being proactive. Obviously ETS is one solution, although one that comes with associated risks. 
    There is obviously a physiological reason why this happens, and I guess its a case of figuring out what that is so that we can then figure out how to treat it.
    Has anyone ever had a range of medical investigations (e.g. blood tests) etc to try and find what it is that is malfunctioning?
    I kind of wish there was a real life House MD to figure this out for us (a tv show for those who've never seen it. Funnily enough they actually had an episode about someone with chronic blushing). 
  8. Mrhot added a post in a topic Just sick of it burning up on our date night   

    I know its depressing isnt it
     
    on the bright side you have a wife who doesnt mind it and doesnt judge you for it.
    Try join  the chat app RedAttack  instructions are on the forum
  9. Big Red added a post in a topic Just sick of it burning up on our date night   

    Would you be red in an air-conditioned office with the temperature set at 17 degrees celcius?
  10. redattack added a post in a topic Just sick of it burning up on our date night   

    I think I shouldn't of posted this after having a drink it's causing you guys think I'm just red after a drink. I was just highlighting my red attack after just one drink it also went on for hours. 
    I'm red in pretty much every situation I believe I'm a blusher and a flusher
    it ruins my life
    I can be slightly pink like first picture and sometimes like a tomato, occasionally I can even be pale
    im not even sure of my natural red shade now as I'm on colonidine and propranolol been on for over ten years. 
    My head more often than not feels hot plus I sweat a lot from my head to
    I just want it to stop it's steadily ruining all aspects of my life 
     
     
     
     
  11. mojow added a post in a topic Just sick of it burning up on our date night   

    I now that your clamps have been removed, has the blushing returned?
  12. Filur added a post in a topic Just sick of it burning up on our date night   

    Hello
    ETS isn't the answer for flushing at my knowledge. 
    I had ets 2 years ago (and removed clamps again due to siteeffects).
    I still blush when drinking alcohol (just like before ets). Ets didn't make any differents. It's weird.. sometimes I flush alot just by one beer. And other times I can drink forever without any flushing. When I flush when drink alcohol I just drink 2 times the amount in water. That helps. 
    ETS helped the social blushing alot.  
    But i would say it also helped with flushing in the gym when working out. I don't look like a tomato there anymore.
    But I can't compare my issues to you because I never have had any weather related issues that bothered me much. And never  flushed related to food either unless it is really spicy.
    But I really don't think ETS is the answer for your flushing. ETS is not without risk.
     
  13. Mrhot added a post in a topic Chat app   

    Good to see people joining i have made you guys MODERATORs so you can kick people out of the chat room if anybody joins that shouldnt be there.
    obvioulsy the more people that join the better it would be for everybody and having somebody to talk to now its more active ill turn notifications on
  14. mojow added a post in a topic Just sick of it burning up on our date night   

    i have psoriasis as well, stress from all this shite
  15. redattack added a post in a topic Just sick of it burning up on our date night   

    I also have psoriasis that's horrible to
  16. redattack added a post in a topic Just sick of it burning up on our date night   

    Big Red would you be happy to send me a picture of you with and without the tinted moisturiser on?
  17. Big Red added a post in a topic Just sick of it burning up on our date night   

    I have a hard time believing that a traumatizing event can suddenly lead to long-term chronic blushing in a person not born with the disorder.  All evidence points to this being a physiological disorder that of course can be aggravated by stress, emotions, etc.
    I would argue that blushing is comparable to psoriasis in a way.  Psoriasis can be triggered and aggravated by external conditions such as stress, emotions, diet, etc. but only in people born with the conditon.  I will never have a psoriasis outbreak regardless of how much stress I'm under because I simply do not have the disorder.
    Someone who begins blushing later in life due to a traumatic event is absolutely (in my opinion) someone who has and has always had a genetic physiological predisposition to blushing.
    What exactly did your doctor say if I may ask?
  18. bobby added a post in a topic Just sick of it burning up on our date night   

    Yea they are full brother and sister's.No they don't blush at all.
    It all seems odd to me people on here so it runs in the family so that's why I've got it.yet I went to cbt and they think its because of an event that happened wen I was 17 .
    I just think I am extreamly unlucky to get it.
  19. Big Red added a post in a topic Just sick of it burning up on our date night   

    Are you siblings full blood relatives (not half-brothers and half-sisters)?  None of them flush or blush at all any more than a regular person does?
  20. Big Red added a post in a topic Just sick of it burning up on our date night   

    I've been using it everday for almost a year now and no one has ever mentioned anything.  I wear it around people who definitely would mention it if they noticed.  I'll just say it's sunscreen if anyone ever does.  It actually really also is suncreen (SPF 20).
  21. bobby added a post in a topic Just sick of it burning up on our date night   

    Hi.
    It is very strange I have 1 brother and 2 sister's and none of them have this problem also my parents and grandparents don't have it.
     
    I'm quite normal wen I'm in my safe place I.e my house but give me 5 mins outside and I'm in fight or flight more and I'm like your first pic then if i see any1 or hav to interact I'm like your second 1.
  22. redattack added a post in a topic Just sick of it burning up on our date night   

    and no one will know?
  23. super_mushroom added a post in a topic Chat app   

    Joined
  24. Big Red added a post in a topic Just sick of it burning up on our date night   

    Please try the Laura Mercier tinted moisturizer.  I'd reccommend the "Porcelain" skin tone based on the pictures you posted.  It helps a ton against moderate flushing.
  25. redattack added a post in a topic Just sick of it burning up on our date night   

    yes it is strange, I would like to know how red others go on here? I don't know how red ill be without the tablets to scared to stop... it bothers me no end I just want to be pale like I used to and not colour up whenever im talking to someone
    Even if I could just cover it with this tinted moisturiser as someone mentioned that would be great
    I just don't know if to pursue this ETS or not